Hey its time for an update. you’ll have to forgive my misspellings ad other errors as i have some nasty papercut-like slices across 4 out of 5 fingers on my left (good) hand. so this might need to be a bit brief.
I’m feeling the effects of all this poison now, after for back to back chemo sessions again. Almost had more today but need a 4th week to get more energy back. I’m just not the spritely 45-year-old who could bounce back from it. I’m starting to get sick of this dirty dishwater and it’s starting to show. It’s to the point where I’m not bouncing back like I used to…
So I’m now on short term disability. I just can’t be counted on to hold down any consistent hours, mornings take a long time to get up and get ready for the day, sometimes i’ll be so pooped and if i didn’t get enough sleep the night before, i’m going back to bed. wake me up for lunch please.
It used to be that I had a full-time job and I manage my cancer on the side; now those roles have reversed. I have to do so much maintenance on myself — especially in the mornings — that by the time I get ready to go to work it’s almost noon. So it’s like I have a part-time job along with my full-time cancer.
2 weeks ago I went to go see my oncologist and we talked about… well, frankly, the usual progression of my specific cancer, what I will heretoafter be calling the ‘endgame’… at one point I straight up asked him, “based on what you’ve seen in other cases and compare them against mine, how long are we talking?“
I didn’t push the questioning any further than that. Seeing as how I was feeling 2 weeks after chemo I can understand where he’s coming from. There will come a time where I can’t stand the chemo anymore and it makes me question why exactly am i suffering like this? Or the chemo just plain won’t work on my tumors anymore… at that point, I’ll have to make that decision to stop treatment and start trying to heal as best I can on my own and fight this stupid thing with the gloves off and see how far it takes us. Until then I’m looking forward to bringing this question up again to him next Halloween.
In related news, I also got (yet another) CT scan on Monday to gauge progress, which we went over today. I’m copying/pasting this stuff as my fingers are goin south on me
The thyroid gland is unremarkable. Right chest wall port tip within the right atrium. No axillary adenopathy. Normal caliber thoracic aorta. No pericardial effusion. Coronary artery calcifications. Pulmonary arteries are unremarkable.No intrathoracic adenopathy.No pneumothorax. No pleural effusion. Left basilar volume loss. No focal consolidation or suspicious pulmonary nodule.Abdomen and pelvis:
Redemonstrated areas of heterogeneous low-attenuation throughout the liver, reflecting sequela of prior embolization. The previously described caudate lesion currently measures 1.4 x 0.5 cm series 2 image 105, previously 1.5 x 1.2 cm. The low-attenuation lesion in the left hepatic lobe measures approximately 1.2 x 1.8 cm series 2 image 100, previously 3.3 x 2.7 cm. No new hepatic lesion. Nodular liver contour with splenic and esophageal varices.
Suspected cholecystectomy clips. Mild splenomegaly. The pancreas and adrenal glands are unremarkable.
Symmetric renal parenchymal enhancement. No hydronephrosis or urolithiasis. The bladder is decompressed. Prostatic calcifications noted.
Scattered colonic diverticula without focal inflammatory change. The known colonic mass is not well identified by CT. Normal appendix. Right lower quadrant percutaneous drainage catheter tip terminating within the left lower pelvis.
Large volume ascites. No adenopathy. No free air.
No aggressive osseous lesion. No acute fracture.
1. Improved hepatic metastatic disease.
2. Resolved enterocolitis.
3. Cirrhotic liver morphology with findings of portal hypertension, including large volume ascites.
About as good a scan as i could hope for, though the coronary artery calcification is not good — watch heart disease take me before the cancer does. I’ll admit, i’ve finally been following everyone’s suggestion to eat what i want, especially when my arm muscles have turned into chicken wings. I’ve been on a quest to replicate a long-gone favorite of mine from Taco Bell, the chilito. I might have to make that recipe the guy has there…
Obviously the chemo is still working. Its just the side-effects i can do without. but i have 1 more week before i get more chemo — and after that scan on Monday, i might just get back up on that horse. i will not relent. i am driven.
And thank you for the continued support. the love i feel coming from all directions, it’s overwhelming sometimes… i can sense the energy from you and it keeps me going. I love you all.
Mom and Billy, my Soul Brother #1, thanks for the visit, it was just what i needed.
i need to get up and walk more…