A call to arms

So I’ve been enjoying just taking chemo pills in the hopes that they will do the same damage to the cancer as infusions; my recent CT scan,¬†unfortunately, has shown otherwise. The cancer is advancing (slowly) but it’s taking a toll on my quality of life already, as I struggle with a bloated abdomen and severe edema in my legs, ankles and feet. I met with my oncologist today and he has a sense of urgency for finding an alternative procedure that will help me more than just reverting me back to what I’ve been doing since the beginning: several IV bags of chemo, with the pump, etc. It’s incredibly inconvenient and the results are expected to be less than before, since I’m a bit weaker and might not be able to handle full doses. Plus, it does nothing to the cancer but beat it back for a bit.

So to all who have offered help, I’m here to ask for it now. I need some help with searching for clinical trials that might help me.

I don’t have a lot of criteria to search with, other than describing what I have and looking for trials that address it: Stage 4 colorectal cancer with metastases in my liver. I’m willing to travel anywhere in the US or even canada i suppose, i don’t want geography to impact my search results too much. If i’m lucky I might land a trial where you live (and then you can enjoy my company in person, woo-hoo)!

If you do search, please feel free to send me anything that looks remotely interesting, I can forward to my oncologist and let him make the call whether it’s a viable study or not.

Here’s the catch: I only have about a week to look, and then I need to get back on IV chemo if I don’t come up with anything. Please feel free to email me directly at eschuttler at gmail.com with URLs.

Here’s a few¬†resources where i need to search, but I’m open to other cancer centers you might know of that holds clinical trials:

https://www.mskcc.org/why-choose-msk

https://www.mdanderson.org/

https://www.cancer.org/treatment/treatments-and-side-effects/clinical-trials/what-you-need-to-know/picking-a-clinical-trial.html

Time is of the essence — I love you and thank you for your continued support. Now’s your chance to help me kill this crap. Please help with a couple hours of your time, if you can, between now and July 21st or 22nd.

thank you, thank you, thank you…